Saturday, August 22, 2009

Update

I didn't give an update in between these past two weeks, ...but wanted to say that after my 7/28 long run, the next week's long run was pretty aweseome. I am learning how to eat, and focusing on getting enough rest and stretching during the week.

Jim got off his IV meds and is getting ready to participate in a clinical trial for Manitol. This is a powdered med that is supposed to liquify the mucus in his lungs to the point where it is much easier to expel the mucus and the bacteria that is infecting his lungs. I'm a bit nervous about it because it requires him to stop inhaling nebulized 7% saline, which is the "miracle" that turned him around in 2006 (getting him off of oxygen.) However, he has tested Manitol once and he said it seems to work even better than the saline. I absolutely trust his judgement when it comes to his medical care so I can't even worry about it. The only problem that we both see is that he may not actually get the Manitol in the first six months of the clinical trial as 50% of participants receive a placebo. But he says he'll know right away if he is on the placebo and will go back to using saline solution if he needs to. He is scheduled to start the trial when we return from vacation.

No comments:

Post a Comment